OpenSNP, a large open source repository for user-uploaded genetic data, will shut down and delete all of its data at the end of April, co-founder Bastian Greshake Tzovaras has confirmed.
In a blog post, openSNPâs Greshake Tzovaras attributed the decision to shutter the site due to concerns of data privacy following the financial collapse of 23andMe and the rise in authoritarian governments around the world.
Founded in 2011 by Greshake Tzovaras, along with Philipp Bayer and Helge Rausch, openSNP became an open and public repository for customers of commercial genetic testing kits, including 23andMe, to upload their test results and find others with similar genetic variations. The site had close to 13,000 users at the time of its closure announcement, making it one of the largest public repositories of genetic data. Since its founding, openSNP has touted its contributions to academic and scientific research, and identified more than 7,500 genomes.
News of openSNPâs shutdown comes in the wake of 23andMe filing for bankruptcy protection, intensifying concerns that the companyâs vast banks of customersâ sensitive genetic data will be sold to the highest bidder, who may not adhere to 23andMeâs privacy commitments. The attorneys general for the states of California and New York, among others, have warned 23andMe customers to delete their data ahead of the court-approved selloff later this year.
Greshake Tzovaras also said a contributing factor in shutting down openSNP was the ârise in far-right and other authoritarian governments,â citing the removal of public data from the U.S. governmentâs websites soon after President Trump returned to power.
âThe risk/benefit calculus of providing free and open access to individual genetic data in 2025 is very different compared to 14 years ago,â wrote Greshake Tzovaras. âSunsetting openSNP â along with deleting the data stored within it â feels like it is the most responsible act of stewardship for these data today.â
When reached by TechCrunch, Greshake Tzovaras was blunt in his decision to shut down openSNP now and not sooner.Â
âThe âwhy nowâ to me is ultimately down to there being what counts for a fascist coup in the U.S.,â Greshake Tzovaras told TechCrunch, a native of Germany.Â
âSeeing people being disappeared from the streets under the most dubious pretexts really canât be called anything else,â he said, referring to the recent reports of people living in the United States, including U.S. citizens, who have been arrested in immigration raids, some whose whereabouts remain unknown.Â
Greshake Tzovaras said the âwholesale dismantling of scientific institutions and science itselfâ since January â the beginning of the second Trump administration â was a factor in the shutdown of openSNP.Â
âI donât think itâs a stretch to worry about how genetic data might be soon abused to make false claims about a variety of topics, effectively bringing back a darker eugenics age,â he said.
Greshake Tzovaras said openSNP has âalways been a balancing actâ between its potential uses and risks, and that the siteâs existence has been an âongoing thought of whether the benefits can outweigh the risks.âÂ
In one historical example he gave â when law enforcement used genetic data from genealogy site GEDmatch in 2018 to identify a notorious serial killer â Greshake Tzovaras said openSNP seemed at the time like it was less relevant or at risk for use by law enforcement compared to larger ancestry-specific databases. (Greshake Tzovaras confirmed to TechCrunch that notwithstanding the open and public nature of the data it stores, openSNP has never received a law enforcement request for any genetic or user data.)
Greshake Tzovaras said that compared to the first Trump administration, âthe misuse of science was both qualitatively and quantitatively very different than what we see today.â
âAlongside the larger conversation about the impact of genetic data in the context of 23andMeâs bankruptcy, we decided that itâs time to pull the plug,â Greshake Tzovaras told TechCrunch.
Greshake Tzovaras also told TechCrunch that on a positive reflection, keeping openSNP running for 14 years may be his âbiggest achievement.â He said openSNP ran on about $100 per month, in the face of commercial startups that have worked to monetize peopleâs data yet ultimately failed. Greshake Tzovaras said that in that sense, openSNP âfeels like a testament to the power of open source/culture.â
The site has also contributed to research and publications âacross a wide range of disciplines â from infosec/privacy all the way to biomedical studies,â said Greshake Tzovaras. Many undergraduates also benefited from having access to real-world data hosted by openSNP, he said.
âIn that sense, I think our hope of âdemocratizingâ access to genomics was at least partially successful,â said Greshake Tzovaras.
Updated to amend the name of openSNPâs name throughout.
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